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<Completed> Another history of Hansen's Disease told by a family

Top event information event list <Completed> Another history of Hansen's Disease told by a family

2019.12.16

Another family story about Hansen's Disease*The event has ended.

Sponsor: The National Hansen's Disease Museum
Sponsored by: Sasakawa Health Foundation

You can download a flyer about another history of Hansen's Disease told by a family. (PDF:2,911KB)

| December 13th (Friday) Application

【会期】
2019年12月13日（金）18時開場

【会場】
日本財団ビル2階第3、4会議室

【住所】
東京都港区赤坂1-2-2

【連絡先】
03-6229-5377

【講演者所属国】
フィリピン、マレーシア、ポルトガル
※同時通訳あり

【定員】
先着40名（空席があれば、当日参加可能です。）
入場無料（事前申込み制）
The session has ended.

▼Schedule

time	Contents
From 18:30	Opening greetings
From 18:35	Philippines Arturo Cunanan (3rd generation)
From 7pm	Malaysia Any Tan (Sungaybro Sanatorium Residents Council), Rossita Harun (2nd Generation)
From 7:45pm	Portugal Fatima Alves (2nd generation)
From 20:15	Question-and-answer session
From 20:25	Closing remarks

Event report December 13th (Friday)

On Friday, December 13, 2019, from 6:30 p.m. to 8:30 p.m., we held a lecture on "Another History of Hansen's Disease as Told by Families" (first day). Over two days, December 13th and 14th, families from five countries, including Japan, spoke about the hardships they faced after being separated from their parents and the struggles they faced after being reunited with their parents. On the first day, families from the Philippines, Malaysia, and Portugal spoke about the rupture of parent-child bonds due to quarantine policies.
We would like to thank many people for their participation.
We would like to introduce the opinions and impressions from the customers who participated.

It was a very valuable opportunity to hear stories focused on the “family” of people from so many countries. It made me think not only as a job but also as a human being.
I don't have many opportunities to hear stories from overseas, so I'm glad to hear valuable stories.
It was a very fulfilling 2 hours. By listening to each person's experience, I was able to think about the life of each person and the life of my family, which I could not understand with the word Hansen's Disease When I heard about each country, I felt the weight that the Leprosy Prevention Law
It was hard to hear about the inhumane violence that was taking place against children at a Portuguese facility. Leprosy patients each country who lived away from their parents were not provided with a safe life without being protected by the adults around them. This shouldn't happen, and I wanted people in the world to know more about Hansen's Disease
I learned from the story of Mr. Fatima Alves of Portugal's spectacular experience at the infant institution. I think it's terrible that the government doesn't apologize for such a painful feeling.
Even in the Philippines, Malaysia, and Portugal, where there is no sterilization or abortion, I felt that there was a problem that the thoughts of parents and children could not be repaired due to attachment formation disorders and life damage in the division of parents and children. It was also shocking that there was no national apology in Portugal, which had no adoption. I thought that Japan and each country should complement each other's good points, and all countries should cooperate and think about measures commensurate with the damage.
Hansen's Disease families, it was an opportunity to cross the world and think about their families' damage, suffering and hope.

In the future, I would like to consider a plan that many customers can participate in. We look forward to your participation.

The National Hansen's Disease Museum / Sasakawa Health Foundation

Greetings/MC	(Curator Otaka)
Arturo Cunanan [Philippines]	Any Tongue [Malaysia]
Rosita Harun [Malaysia]	Fatima Alves [Portugal]

| Application on Saturday, December 14th

【会期】
2019年12月14日（土）13時開場

【会場】
国立ハンセン病資料館 1階映像ホール

【住所】
東京都東村山市青葉町4-1-13

【連絡先】
042-396-2909

【講演者所属国】
ブラジル、日本
※同時通訳あり

【定員】
先着130名（空席があれば、当日参加可能です。）
入場無料（事前申込み制）
The session has ended.

▼Schedule

time	Contents
From 13:30	Opening greetings
From 13:35	Brazil Elson Diaz da Silva (Former leprosy patients Group MORHAN), Jose Ademilson da Roca Picanso (Second Generation)
From 14:45	Japan Guangnan Huang (2nd generation)
From 3:15 p.m.	Question-and-answer session
From 15:25	Closing remarks

Event report Saturday, December 14th

On Saturday, December 14, 2019, from 1:30 p.m. to 3:30 p.m., we held a lecture on "Another History of Hansen's Disease as Told by Families" (second day). Following on from the lectures given by families from the Philippines, Malaysia, and Portugal on the 13th (Friday), families from Brazil and Japan talked about the severing of their bonds due to the quarantine policy, the difficulty of building relationships after being reunited, and the ongoing suffering. .
We would like to thank many people for their participation.
We would like to introduce the opinions and impressions from the customers who participated.

Thank you for sharing your painful experience. I found it scary to create a social structure that would be excluded by city officials and neighbors. I thought I had to be careful only about things that were close to me.
I had a hard time because of my family's illness, and the tearful confession hurt my heart. Please do your best to all the ex-patients and their families who are still being discriminated against because of their illness.
I participated in the event for the first time. It hurt my heart to hear the live voice, and I strongly wanted more people to know this reality. Thank you very much.
I was informed that there are sad feelings and painful experiences of my family members regardless of region or country. Thank you for planning.
I was very impressed to hear the story of having a hard life as a relative of Hansen's Disease The tears of Brazil's (Jose Ademilson da Roca Picanso)'s mother who finally met died, and then the song of Nisei's (Guangnan Huang) in Japan. I also feel that I have been on the side of discrimination as one of the "world" for a long time. About 20 years ago when I noticed Hansen's Disease, discrimination against others, etc., but I would like to continue to know and learn more. I hope that this history study will be properly positioned in school education. We are looking forward to future events. We pray for the success of everyone in the museum.
There were many things I didn't know. I never knew that there were patients in foreign countries similar to those in Japan. But I want young people today to know more that Japan couldn't even give birth to children. Don't let the misfortune of what you don't know continue.
Hansen's Disease from my family, so thank you very much for your precious time today. I learned about the mechanism of social structure where isolation and discrimination spread without being able to convey appropriate information. I deeply regret that not only the country but also our citizens, who have selfish prejudices, are responsible for creating this structural problem, and I pray for the earliest possible recovery of our relationships. I would like to contribute to a society without discrimination.

In the future, I would like to consider a plan that many customers can participate in. We look forward to your participation.

The National Hansen's Disease Museum / Sasakawa Health Foundation